How to Build a Psoriasis Support System

Introduction
Living with psoriasis isn’t just about soothing red, itchy patches of skin. It’s about facing stares in public, answering awkward questions, managing endless appointments, and sometimes, quietly feeling alone in your own body. Psoriasis is visible, unpredictable, and deeply tied to emotional well-being.
That’s why a strong support system is not a luxury, it’s essential. Support means having people who understand, professionals who guide you, and communities that remind you that you are not alone. Research shows that people with psoriasis are at higher risk of anxiety and depression, often because of isolation and stigma. But with the right network around you, living with psoriasis becomes less overwhelming and more manageable.
This article explores how to build a support system across every area of life: at home, at school, at work, in the doctor’s office, and in your community. It’s a step-by-step guide designed to help you feel more confident, connected, and supported in your journey.
Why Support Matters in Psoriasis
Psoriasis is not just a skin condition, it’s an autoimmune disease that can impact identity, relationships, and mental health. Stress and isolation often worsen symptoms, creating a cycle where flares trigger emotional strain, and emotional strain fuels more flares.
Support can help break that cycle. When family members learn why you moisturize constantly, or when coworkers understand psoriasis is not contagious, life feels less like a battle. Customers often share that just having one supportive friend or partner makes flares easier to handle. Others explain that finding a knowledgeable dermatologist or a patient community online gave them hope when they felt stuck.
In other words, support doesn’t cure psoriasis, but it does help you live with it on your own terms. A strong support system can:
- Reduce feelings of shame and isolation.
- Improve confidence in relationships.
- Help manage workplace or school challenges.
- Provide practical help with routines and treatments.
- Create a sense of belonging and resilience.
With this foundation in mind, let’s look at how to build the right support in every area of your life.
Building Support at Home: Family & Partners
Home should be the place where you feel safe, but for many people with psoriasis, it’s also where the condition is most visible. Skin flakes on the sheets, bottles of moisturizer on every surface, the urge to scratch during dinner, these can create frustration or misunderstanding among family members and partners.
Support starts with education and honest communication. Your loved ones may want to help, but if they don’t understand psoriasis, their comments can feel dismissive or hurtful.
Common Home Challenges & How to Address Them
“Stop scratching!” — Understanding the itch
Psoriasis itching isn’t a bad habit; it’s caused by inflammation and nerve overstimulation. Explaining this to family members can help them see that it’s not about willpower.
Customer example: One customer shared how her partner finally understood after she explained that scratching was like “trying not to cough when you’re sick.”
“Why is the bed covered in flakes?” — Dealing with shedding
Shedding is natural in psoriasis, and it can be embarrassing. Practical solutions, like using darker sheets, washing bedding more often, or having a designated “treatment towel” , reduce stress and show family members it’s manageable.
“Why are there creams everywhere?” — Normalizing routines
Psoriasis requires constant moisturizing and treatments. Keeping travel-size lotions in every room can help, and explaining this need to family can turn frustration into understanding.
Support in Relationships & Intimacy
Partners may struggle to know how to respond when psoriasis flares affect intimacy. Stained sheets, plaques in visible areas, or fatigue from treatment can create distance.
•Be open about what feels comfortable.
•Use humor when appropriate, it can ease tension.
•Remind your partner that psoriasis is not contagious.
Customer example: A man explained to his partner, “This isn’t something you can catch. It’s just something we’ll handle together.”
His openness transformed awkwardness into closeness.
How to Talk to Loved Ones
•Be honest but simple: “Psoriasis is an autoimmune condition. It makes my skin overproduce cells, which causes itching and flaking.”
•Share what helps: Let them know if you’d prefer lotion reminders, distraction when you’re itching, or just quiet acceptance.
•Correct gently: If a family member minimizes your symptoms, explain calmly: “It may not look serious, but it’s painful and takes daily effort to manage.”
Key Takeaway
Support at home starts with clarity. Educate your family, be honest about your needs, and invite them to be part of your care, whether that’s picking up moisturizer at the store or simply offering patience when flares strike.
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Raising Confident Children with Psoriasis.
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Raising Confident Children with Psoriasis
Psoriasis can be especially tough on kids. Children and teens already struggle with fitting in, and a visible skin condition can make them feel different, embarrassed, or even targeted by bullying. A strong support system helps them develop confidence and resilience, even when peers don’t understand.
Validate Their Feelings
The first step is acknowledgment. When your child says, “Why do I look different?” or “Kids at school stared at me,” resist the urge to brush it off with phrases like “Don’t worry about it” or “It’s not a big deal.” Those responses can make them feel dismissed. Instead:
•Listen first. Let them explain what happened before jumping in with solutions. Sometimes, kids just need to be heard.
•Reflect their emotions. Say things like, “I can see that made you feel embarrassed,” or “That must have been frustrating.” This shows you understand what they’re going through.
•Normalize their experience. Remind them that it’s okay to feel upset and that many people with psoriasis feel the same way. For example, “Lots of kids and adults with psoriasis have felt like this, and it doesn’t make you weak.”
•Empower with perspective. After validating, shift toward resilience: “Yes, it’s hard when people stare, but it doesn’t change who you are or all the great things about you.”
•Use role models. Share stories of adults or public figures with psoriasis who lead full, confident lives. This helps kids see a positive future for themselves.
Customer example: A parent explained, “Once I stopped saying, ‘Don’t worry about it,’ and started saying, ‘I know it’s hard,’ my daughter opened up to me more. Then we practiced together what she could say to classmates, which made her feel braver the next day.”
Make Skincare Routine a Team Effort
Children may resist treatments if they feel like chores. You can reframe them as part of a caring routine:
•Turn moisturizing into a short game or set up a sticker chart with rewards.
•For older kids, let them choose their favorite creams or towels.
•Keep explanations simple: “This cream helps your skin stay calm and strong.”
Work with Schools
Teachers and school nurses can be allies, but only if they understand psoriasis. Provide them with a note or quick conversation:
•Explain that your child may need extra bathroom breaks for cream application.
•Request flexibility with uniforms if clothing irritates plaques.
•Encourage teachers to intervene if teasing or bullying occurs.
Customer example: One parent shared, “When I told the teacher ahead of time, she not only let my son use lotion in class, but also stopped other kids from making comments.”
Prepare Them for Social Situations
Kids with psoriasis often get asked, “What’s on your skin?” Role-play responses so they feel ready:
•Simple answer: “It’s called psoriasis. My skin grows faster than normal, so it gets flaky.”
•Confidence boost: “It doesn’t hurt you — it’s just my skin.”
The more prepared they feel, the less likely embarrassment will stop them from participating in school or social activities.
Connect with Other Families
Support groups, in person or online, can be powerful for both kids and parents. Meeting others who face the same challenges helps children see they are not alone, and it gives parents a chance to share strategies.
Key Takeaway
Raising a child with psoriasis isn’t just about managing skin. It’s about nurturing confidence, teaching self-advocacy, and creating an environment where they feel supported at home, at school, and with peers.
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Medical Support — Building the Right Team.
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Medical Support: Building the Right Team
Psoriasis is a lifelong condition, and having the right medical team can make the difference between years of frustration and finally finding relief. Unfortunately, not every doctor is equally experienced in treating psoriasis, and many patients share stories of being misdiagnosed for years, or kept on the same ineffective cream long after it stopped working. Building a strong support system means surrounding yourself with professionals who listen, adjust treatment when needed, and advocate for your long-term health.
Find a Psoriasis-Specialized Dermatologist
Dermatology is a broad field, and some doctors rarely see psoriasis cases. Look for a dermatologist who specializes in psoriasis treatment or participates in clinical studies.
•Use resources like the National Psoriasis Foundation’s directory or local hospital referral networks.
•Don’t be afraid to ask a doctor directly: “How many patients with psoriasis do you see regularly?”
•If they hesitate or give vague answers, it may be a sign to keep looking.
Customer example: One woman described how switching to a dermatologist who ran a psoriasis clinic changed her life, she finally received a tailored treatment plan after years of generic advice.
Advocate for Yourself
If a doctor dismisses your symptoms or says, “It’s just cosmetic,” remember: psoriasis is an autoimmune condition, not a minor skin issue. You have every right to push for care.
•Bring a written list of questions to every appointment.
•Track your symptoms in a journal (flare dates, triggers, treatments tried).
•If you feel unheard, seek a second opinion. Many customers report that persistence led them to the right doctor.
Expand Your Medical Team
Psoriasis care often requires more than one professional:
•Mental health therapists: Anxiety, depression, and social stress are common in psoriasis. Therapists trained in CBT (Cognitive Behavioral Therapy) or mindfulness can help patients reframe negative thoughts and reduce stress-driven flares.
•Nutritionists or dietitians: Some patients find that food triggers worsen their symptoms. A nutritionist can help identify patterns without restrictive fads.
•Rheumatologists: Up to 30% of people with psoriasis develop psoriatic arthritis. If you have joint pain, stiffness, or swelling, it’s critical to consult a rheumatologist early.
Customer example: A man shared that once he added a rheumatologist to his team, he finally understood why his morning stiffness was connected to his psoriasis, it was early psoriatic arthritis. Treating it prevented long-term joint damage.
How to Get the Most from Appointments
Doctor visits are often short, so preparation helps:
•Keep a flare diary with photos to show progress or setbacks.
•Note any side effects from treatments.
•Be honest about lifestyle stressors (lack of sleep, work stress, diet changes). These matter as much as medications.
Key Takeaway
Psoriasis is not just about prescriptions, it’s about guidance, empathy, and teamwork. A strong medical support system should feel like a partnership, not a lecture. If you walk out of an appointment feeling dismissed, keep searching. The right team is out there, and it can make every other part of your support system stronger.
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Emotional & Mental Health Support.
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Emotional & Mental Health Support
Psoriasis isn’t only physical, it takes a deep toll on mental health. The constant itching, visible plaques, and social stigma can leave people feeling anxious, depressed, or withdrawn. Studies show that people with psoriasis are at higher risk of depression than the general population, and many customers share that the emotional burden is harder to manage than the skin itself.
Building a strong support system means caring for your mind as much as your skin.
Why Therapy Helps
Therapy is not about “fixing” weakness, it’s about giving yourself tools to handle stress, stigma, and the ups and downs of a chronic condition.
•Cognitive Behavioral Therapy (CBT): Helps identify negative thought patterns like “Everyone is staring at me” and replace them with healthier ones such as “Some may notice, but it doesn’t define me.”
•Mindfulness-based therapy: Teaches techniques to focus on the present moment instead of spiraling into stress about flares.
•Group therapy: Offers a space to share struggles with others who truly understand, reducing isolation.
Customer example: One woman explained that therapy helped her stop canceling social plans. She said, “Instead of assuming people would judge me, I learned to focus on what I enjoy about being there.”
Coping with Anxiety and Depression
•Track your moods: Just like flare diaries, noting emotional highs and lows helps you spot triggers.
•Build small routines: Even 10 minutes of stretching, journaling, or deep breathing can break cycles of stress.
•Know when to seek help: If sadness or anxiety lingers for weeks, or you lose interest in activities you normally enjoy, it may be time to seek professional support.
Everyday Mental Health Habits
•Connect socially: Even short phone calls or coffee with a trusted friend can help.
•Protect your sleep: Poor sleep fuels stress and inflammation.
•Move your body: Gentle exercise like walking or yoga reduces anxiety while being skin-friendly.
•Celebrate small wins: Clearer skin days, nights without itching, or setting a boundary at work are victories worth recognizing.
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Handling Stigma and Awkward Questions
One of the hardest emotional challenges in psoriasis is facing stares or comments from strangers, coworkers, or even family. These moments can trigger shame, anger, or withdrawal, but preparing responses in advance can help you feel more in control.
Here are some scripts you can adapt:
When someone asks, “What’s on your skin?”
•Short and simple: “It’s psoriasis — an autoimmune condition. It’s not contagious.”
•For kids/teens: “My skin grows faster than normal, so it looks flaky sometimes.”
When someone says, “That looks painful”
•Reassuring tone: “Sometimes it’s uncomfortable, but I’ve learned how to manage it.”
•Boundary-setting: “Thanks for asking, but I’d rather not talk about it right now.”
When a coworker or peer whispers or stares
•Calm approach: “I noticed you looking. Just so you know, it’s psoriasis — nothing to worry about.”
•Light humor (if you’re comfortable): “Don’t worry, it’s not catching!”
When family minimizes it with “It’s just dry skin”
•Clarify gently: “I know it may look like that, but psoriasis is an autoimmune condition. It takes a lot of daily care.”
Customer example: A man shared that having a few “go-to lines” stopped him from panicking in public. “Before, I’d get embarrassed and leave. Now, I just explain briefly and move on, it takes away the power from the situation.”
Why Scripts Matter
Preparing a few sentences in advance keeps you from being caught off guard. Instead of freezing, you can respond with confidence and protect your mental health from the spiral of shame or stress that often follows these interactions.
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Key Takeaway
Psoriasis may show up on the skin, but it deeply affects mental health. Building a support system means making room for therapy, self-care routines, and safe conversations. Strong mental health isn’t just about feeling better emotionally, it can also reduce flares and improve treatment outcomes.
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Workplace & School Support.
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Workplace & School Support
Psoriasis doesn’t stay at home, it follows you to the office, the classroom, and everywhere in between. Stress, long hours, and public settings can make symptoms more visible and harder to manage. Many customers say they’ve skipped meetings, avoided group projects, or worn uncomfortable clothing just to hide their plaques. But with the right support at work or school, you don’t have to choose between your health and your success.
Know Your Rights
In many countries, psoriasis is recognized as a chronic medical condition. That means you may be eligible for accommodations under laws like the Americans with Disabilities Act (ADA) in the U.S. or similar protections elsewhere.
•At work: You can request flexible schedules for medical appointments, adjustments to dress codes, or even workspace modifications (like sitting near a restroom if frequent breaks are needed).
•At school: Students can ask for bathroom passes for cream application, modified physical activities during flares, or additional support if treatments affect attendance.
Customer example: One employee explained, “Once I finally talked to HR, I was allowed to wear more comfortable clothes instead of the uniform. It made a huge difference in how I felt every day.”
Manage Symptoms at Work or School
•Desk or locker kit: Keep moisturizer, tissues, and discreet clothing options handy.
•Plan for flakes: If shedding is noticeable, keep a small handheld vacuum or lint roller in your space.
•Choose comfort over hiding: Loose, breathable fabrics can reduce irritation and stress.
Scripts for Workplace & School Situations
Coworker asks, “What’s on your arm?”
•“It’s psoriasis. It’s not contagious, just an autoimmune condition I manage.”
Classmate teases, “Ew, what’s wrong with your skin?”
•Calm but firm: “It’s called psoriasis. It looks different, but it won’t hurt anyone.”
•Teacher intervention: Provide staff with a quick guide so they can address teasing immediately.
Supervisor questions time off for appointments
•“I have a chronic autoimmune condition that requires regular care. I’ll make sure my work is covered, but I need flexibility for treatment.”
Nervous about a job interview with visible plaques
•Practice a neutral response in case it comes up:
“I manage psoriasis, a chronic skin condition. It doesn’t affect my ability to perform.”
Building Allies in Your Environment
Having one supportive teacher, colleague, or supervisor can make a world of difference. Consider sharing more openly with someone you trust, they may become your advocate in group settings.
Customer example: A student said, “When I told one teacher what psoriasis was, she helped explain it to the class in a science lesson. After that, no one teased me again.”
Key Takeaway
Support in professional or educational environments is about preparation and communication. Knowing your rights, planning small strategies for symptom management, and having scripts ready can reduce stress and make you feel more in control. Psoriasis may show up in the classroom or office, but it doesn’t have to define your performance or potential.
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Finding a Psoriasis Community.
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Finding a Psoriasis Community
Living with psoriasis can feel isolating. Friends and family may sympathize, but unless they live with the condition themselves, they may never fully understand what it means to wake up to flakes on your pillow, or to feel hesitant about shaking someone’s hand. That’s where community support comes in, connecting with others who “get it” can provide comfort, practical tips, and a reminder that you’re not alone.
Online Communities
Digital spaces have opened the door for people with psoriasis to connect across the world.
•Specialized forums: Places like the National Psoriasis Foundation’s Inspire community offer moderated discussions with medical input.
•Social platforms: Facebook groups and other online communities give 24/7 peer support and shared experiences.
•Customer voices: Many describe online communities as a lifeline — “I felt less ashamed once I read stories from people going through the same thing.”
Tip: Online groups vary in tone. Some are supportive and solution-focused, while others can feel overwhelming. Don’t hesitate to leave a group if it makes you feel worse rather than better.
Local Support Groups
Face-to-face connections can be just as powerful:
•Hospital-based groups: Some dermatology centers host patient meetings led by healthcare providers.
•Community meetups: The National Psoriasis Foundation and similar organizations organize in-person events in major cities.
•Peer mentoring programs: Pairing up with another person living with psoriasis can create one-on-one accountability and encouragement.
Customer example: A young adult shared, “Meeting people my age with psoriasis at a support group was the first time I didn’t feel like the odd one out.”
Choosing the Right Community
•Look for positivity and constructive conversation.
•Avoid spaces that focus only on “miracle cures” or unverified treatments.
•Seek a balance: a group that allows venting but also encourages resilience.
The Power of Connection
Community doesn’t erase psoriasis, but it can reshape how you live with it. Knowing that others face the same daily routines, carrying lotion everywhere, explaining psoriasis repeatedly, or navigating relationships, makes the journey less isolating. Support networks provide both emotional strength and practical strategies.
Key Takeaway
Whether online or in-person, community is a crucial part of your psoriasis support system. It offers perspective, encouragement, and the simple but powerful reminder that you are not in this alone.
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Financial & Insurance Support.
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Financial & Insurance Support
Psoriasis is not only physically and emotionally demanding, it can also be financially stressful. Treatments, specialist visits, and even basic supplies like moisturizers add up quickly. Many customers share stories of feeling discouraged when insurance denied coverage for biologics or when co-pays became overwhelming. A strong support system also includes knowing how to navigate the financial side of care.
Understand Your Insurance Coverage
•Review your policy: Check if psoriasis treatments (including biologics, light therapy, or specialty creams) are covered.
•Request a formulary list: This shows which medications are preferred or require prior authorization.
•Keep records: Save every denial letter, bill, and appeal, documentation is key when challenging insurance decisions.
Customer example: One patient explained, “I was denied twice for a biologic until I submitted photos of my flares and a journal showing how much it impacted my daily life. On the third try, I was approved.”
Advocate for Yourself
•Appeals matter: Many first-round denials are overturned if you appeal with supporting medical documentation.
•Ask your doctor for help: Dermatologists often have staff trained in navigating insurance paperwork and appeals.
•Use patient assistance programs: Some pharmaceutical companies offer financial support or reduced-cost medication.
Explore Financial Assistance Options
•Nonprofit organizations: The National Psoriasis Foundation and similar groups often list grants or co-pay assistance resources.
•Hospital social workers: Many hospitals have staff who specialize in helping patients apply for financial aid.
•Government programs: Depending on your location, chronic illness programs may cover part of your treatment costs.
Budgeting for Everyday Care
Not all costs are covered by insurance. Moisturizers, bedding, and clothing often come out of pocket. Small strategies can help:
•Buy fragrance-free moisturizers in bulk.
•Use protective bedding covers to reduce laundry costs.
•Track spending to see where small adjustments can make treatment more affordable.
Reducing Stress Around Costs
Money worries can trigger flares, adding pressure to an already difficult condition. Building financial support is just as important as building emotional support. Talking openly with your doctor about what you can realistically afford helps prevent burnout from unrealistic treatment plans.
Key Takeaway
Financial strain is a hidden but common burden of psoriasis. By knowing your rights, advocating for coverage, and seeking out assistance programs, you can ease the weight of costs and focus more on your health.
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It All Together — Your Psoriasis Support Plan.
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Putting It All Together: Your Psoriasis Support Plan
Living with psoriasis can sometimes feel like juggling too many things at once: appointments, flare-ups, social situations, and the emotional toll of explaining yourself again and again. That’s why building a support system isn’t about one big change, it’s about creating a network of small, reliable supports in every area of your life.
Here’s how you can put it all together into a practical plan:
At Home
•Educate family and partners about psoriasis, explain the itch, flaking, and routines.
•Be honest about your needs: whether it’s patience during flare-ups or help with daily skincare.
•Use scripts for awkward questions or dismissive comments, turning frustration into understanding.
For Children with Psoriasis
•Validate their feelings and help them express what they’re going through.
•Role-play school conversations so they can answer confidently when classmates ask questions.
•Work with teachers and nurses to ensure they have flexibility and protection from bullying.
With Your Medical Team
•Seek out dermatologists who specialize in psoriasis and understand the latest treatments.
•Build a wider team with therapists, nutritionists, or rheumatologists if needed.
•Use a flare diary to make doctor visits more effective.
For Mental & Emotional Health
•Consider therapy options such as CBT or mindfulness-based support.
•Use coping scripts for stigma and comments to protect your confidence.
•Build daily routines that include rest, joy, and gentle movement.
At Work or School
•Know your rights for accommodations under disability laws.
•Keep a discreet kit with moisturizer, tissues, and backup clothing.
•Be prepared with scripts for questions from coworkers, classmates, or supervisors.
In Your Community
•Join online or local support groups to connect with others who understand.
•Choose communities that are positive and constructive.
•Seek peer mentoring or group programs if you prefer structured support.
Financial & Insurance
•Review your insurance coverage and don’t hesitate to appeal denials.
•Ask doctors and social workers for guidance with patient assistance programs.
•Track costs and budget for daily care needs to reduce stress.
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A Living Plan
Your psoriasis support system will evolve over time. What you need at age 20 may look different at 40. Some supports may fade while new ones appear, a partner, a therapist, a workplace ally, or an online community. The key is to keep building and adjusting, so you never feel like you’re carrying the weight of psoriasis alone.
Key Takeaway
A psoriasis support system isn’t just about one person or one strategy, it’s about weaving together support at home, in your relationships, in the doctor’s office, in your workplace, and in your community. Each layer strengthens the next, making the journey more manageable and less lonely.
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Conclusion: You Don’t Have to Do This Alone
Psoriasis is more than a skin condition. It touches your confidence, your relationships, your career, and your peace of mind. But no one should have to face those challenges in isolation. With the right support system, you can replace shame with strength, and frustration with resilience.
Support starts small; a partner who understands, a dermatologist who listens, a teacher who steps in when classmates whisper, a friend in a support group who says, “Me too.” Each layer of support reinforces the others, creating a network that carries you through flares and setbacks.
The truth is, psoriasis may always be part of your life, but it doesn’t have to define it. With knowledge, community, and care, you can live with dignity and pride. At Nopsor, we see ourselves as part of that system of support more than a treatment, we are a resource, an ally, and a community committed to helping people with psoriasis live fully, not quietly in the shadows. Our mission has always been to stand beside you, to make daily life lighter, and to show that relief is possible without giving up who you are.
For more resources and guidance, explore our Psoriasis Knowledge Hub
, where you’ll find support across every category:
Types of Psoriasis — learn how psoriasis shows up differently.
Treatments — explore medical and natural options.
Diet & Nutrition — discover foods that can support your skin.
Emotional Support — build confidence, reduce stress, and connect with others.
Lifestyle Tips — find practical ways to live fully with psoriasis.
You don’t have to do this alone. The stronger your support system, the more empowered you’ll feel to live your life with psoriasis in the background, but never in control.
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