Why You Need a Strong Support System

Living with psoriasis is more than just managing itchy, inflamed skin—it’s navigating relationships, daily routines, and emotional well-being while dealing with an unpredictable condition.

Many people with psoriasis struggle with:
❌ Lack of understanding from family ("Stop scratching!"—as if it’s that simple).
❌ Embarrassment in relationships (stained sheets, skin flaking, self-consciousness).
❌ Feeling alone in their journey (friends and coworkers not knowing what psoriasis is).
❌ Difficulty accessing treatment (insurance, finding the right doctor).

🔬 Scientific Proof:
A study in the Journal of the American Academy of Dermatology found that over 40% of people with psoriasis experience depression or anxiety, often due to lack of social support and understanding (JAAD Study).

So, how can you build a strong support system to help manage the physical, emotional, and social challenges of psoriasis?

This guide provides a step-by-step approach for strengthening your personal, medical, and community support to make your journey easier and more empowering.

Step 1: Educating Family & Friends About Psoriasis

Why it’s important:
Your loved ones want to help but may not fully understand what psoriasis is like. Educating them reduces frustration and helps them support you better.

Common Challenges & How to Address Them

🔹 "Stop Scratching!"—Understanding the Itch

• Psoriasis itching can be unbearable and isn’t always about willpower.
• Explain: The urge to scratch is caused by nerve overstimulation and inflammation, not just habit.

🔹 "Why is the bed covered in flakes?"—Dealing with Stained Sheets & Clothes

• Reality: Skin shedding happens, and some treatments (like coal tar) can stain sheets and clothes.
• Solutions: Use dark-colored sheets, wash bedding more often, and keep a designated "treatment towel."

🔹 "Why is there lotion everywhere?"—The Need for Constant Moisturizing

• Reality: Moisturizing multiple times a day is non-negotiable for psoriasis care.
• Help Loved Ones Understand: Keeping small bottles of moisturizer in every room prevents dry skin discomfort.

💡 Pro Tip: Have an honest conversation with family about what psoriasis is, what it isn’t, and how they can best support you.

Step 2: Parenting a Child with Psoriasis

Why it’s important:
Psoriasis can be especially tough on kids—they may feel different from their peers and struggle with itching, discomfort, or bullying.

How to Support a Child with Psoriasis

✔ Validate Their Feelings

• Acknowledge that it’s hard to deal with stares, questions, and discomfort.
• Remind them that they are not alone—millions of kids and adults have psoriasis.

✔ Make Skincare a Fun Routine

• Turn moisturizing time into a game or reward system to encourage consistency.

✔ Work with Schools

• Inform teachers and school nurses about your child’s condition.
• Ask for accommodations if needed (e.g., extra bathroom breaks for applying creams).

✔ Help Them Handle Social Situations

• Teach them how to answer questions from classmates with confidence.
• Role-play conversations so they feel prepared when people ask about their skin.

💡 Pro Tip: Connect with other parents of kids with psoriasis through online support groups for shared advice and encouragement.

Step 3: Finding the Right Medical Support

Why it’s important:
A great dermatologist can change your treatment journey, but not all doctors are equally knowledgeable about psoriasis.

How to Build a Strong Medical Team

✔ Find a Psoriasis-Specialized Dermatologist

• Look for doctors who treat psoriasis regularly (search on the National Psoriasis Foundation directory).

✔ Advocate for Yourself

• If a doctor dismisses your symptoms or concerns, don’t hesitate to seek a second opinion.

✔ Explore Additional Medical Support

• A mental health therapist can help with psoriasis-related anxiety or depression.
• A nutritionist can help identify diet triggers that might worsen flare-ups.

💡 Pro Tip: Keep a symptom journal to track flare-ups, treatment reactions, and lifestyle factors—this makes doctor visits more productive.

Step 4: Workplace & School Support

Why it’s important:
Psoriasis can impact job performance, confidence, and daily comfort in the workplace or classroom.

How to Get the Right Support at Work & School

✔ Know Your Rights

• In many countries, psoriasis is considered a chronic condition that qualifies for accommodations.
• Ask about flexible work arrangements if frequent doctor visits are needed.

✔ Manage Symptoms at Work/School

• Keep moisturizer at your desk or locker for midday touch-ups.
• Advocate for dress code flexibility if needed (e.g., long sleeves for sun protection).

💡 Pro Tip: If psoriasis affects your productivity or attendance, consider a private conversation with HR or your teacher to discuss solutions.

Step 5: Building a Psoriasis Community

Why it’s important:
Having people who understand your journey makes a huge difference.

Where to Find Psoriasis Support

✔ Online Communities

• r/Psoriasis on Reddit – Real-time support and treatment discussions.
• National Psoriasis Foundation’s Inspire Community – Expert-moderated discussions.

✔ Local Support Groups

• National Psoriasis Foundation Meetups – In-person events in major cities.
• Hospital Support Groups – Some dermatology centers host patient support groups.

💡 Pro Tip: Try different groups until you find one that feels right for you.

Printable Checklist: Your Psoriasis Support Plan

✅ Talk to family & friends about how psoriasis affects daily life.
✅ Educate partners about skin flaking, treatment routines, and why scratching is hard to avoid.
✅ Support your child with psoriasis by building confidence & a fun skincare routine.
✅ Find a knowledgeable dermatologist and build a medical team (nutritionist, therapist).
✅ Advocate for workplace or school accommodations when needed.
✅ Join an online or local support group for encouragement & shared experiences.
✅ Take care of your mental health—stress triggers flare-ups.
✅ Celebrate small wins—clear skin days, good doctor visits, or positive self-talk.

💡 Final Thought: You are never alone in this journey—building a support system makes living with psoriasis easier, healthier, and less overwhelming.

References

• National Psoriasis Foundation: Offers comprehensive support, including access to support groups, educational materials, and community events.​

• Psoriasis and Psoriatic Arthritis Alliance (PAPAA): A UK-based charity offering resources, support, and advocacy for individuals dealing with psoriatic conditions.